While our Colorado NETS support group leader, Mr. Cy Ball, is no longer physically with us, his spirit is always with us and our Colorado NETS support group.
As you can see below, Cy’s last entry from this difficult year and a half was posted on February 24th, 2021. He unfortunately got COVID. He was in and out of the hospital. In March of this year, he wrote me and told me he needed tricuspid valve surgery. Carcinoid heart disease affects more than 50% of patients with carcinoid tumors.
Cy was very symptomatic with edema and fatigue. Cy had many supportive and prayerful well-wishers. Sadly, our support group leader passed away on April 21st, 2021.
He will be deeply missed.
Those we love don’t go away
They walk beside us everyday
Unseen, unheard, but always near,
Still loved still missed and very dear.
I am keeping his postings on our website to bring his experience with NET cancer into our heart and keep them in our memory.
Many of you may not know, but Josh Mailman is an internationally recognized advocate for neuroendocrine tumor patients as well as an advocate for integrative oncology, nuclear medicine, and molecular imaging and the President of NorCal CarciNET Community. He contacted me and thankfully offered to set up and teach me about a list serve to allow our group to communicate with each other. He has added all of our email addresses to the system. If you are not a part of the list, please reach out to me through the “Contact Us” page to be added.
An outside NET picnic/meeting is being planned for the end of the summer when more Coloradoans are COVID vaccinated. More information to follow.
Until our first summer meeting, please refer to our NETS information sources page. Many of those foundations and organizations are having live webinars with experts in the NET field and have NET educational video series available for no cost.
Please contact me with any questions or concerns. Stay well everyone.