We have moved the support group website to our new platform and web address.
Please visit us at:
2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference
Join LACNETS for the 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference on Saturday, June 19th. This live online event features: 11 NET experts, a live Q&A with the experts, a NETs 101 session for the newly-diagnosed, patient and caregiver stories, and much more!
Registration Link: https://www.lacnets.org/upcoming-meetings/2021conf
Run For Hope in Ft. Collins will be rescheduled
Sorry, the Run for Hope is being rescheduled. We will repost when we have a date.
The Run for Hope is still going strong. Originally started by one of our group’s founders to support NETs it now provides funds to several cancer foundations.
It is a beautiful and fun event!
Fossil Creek Park
5821 S Lemay Ave.
Fort Collins, CO 80525
COVID-19 Information from NETRF
This message is from the Neuroendocrine Research Foundation.The coronavirus disease (COVID-19) outbreak concerns everyone in the NET community. Issues range from reducing exposure to the disease to getting basic supplies. NETRF encourages patients and families to seek information and guidance from the U.S. Centers for Disease Control, the World Health Organization, as well as regional health authorities.
NETRF will offer NET-specific updates as information becomes available. We’ve compiled information on reducing the risk of COVID-19 as well as coping with social distancing and isolation.
Thanks to NETRF Board member and NORCAL CarciNET president Josh Mailman for recently posting a Q&A with Pamela Kunz, MD, NET specialist, and Janice Brown, MD, infectious disease specialist, Stanford Unversity, to address NET patients’ common concerns.
NETRF Board member Dr. Mark Lewis, a NET patient and oncologist at Intermountain Health, shares his thoughts in this interview.
My thanks to the Neuroendocrine Research Foundation.
May we all have the best possible outcomes,
Cy
More NETS and COVID-19 info.
It is important that each of us has as much information as we need!Dr. Eric Liu shared this link today on the Facebook group called Dr. Liu’s Zebras. He wrote some of it as well.
Now more than ever, may we all have the best possible outcomes,
Cy
A New Video About PRRT.
The Carcinoid Cancer Foundation has released a new video about PRRT. Check it out here:
May we all have the best possible outcomes,
Cy