Donate Tumor Tissue for Research

This from our friend and member Annie Farrell:

A subject to let our fellow NET travelers know about.  I haven’t had tissue taken in a long time.  Don’t think the biopsy two years ago of the golf ball sized tumor near my thyroid counts since they probably just biopsied it, saw it was NET and threw away the remains.

 

Donate Tumor Tissue to Help Research

Consenting to donate excess tumor tissue, from a biopsy or surgical procedure, helps advance our knowledge of NETs by providing researchers with an essential resource. See our FAQs about tumor tissue donation. (MORE)

 

Patients can donate tumor tissue through Pattern.org.  Pattern.org links to an electronic consent form where patients can learn more about contributing. Should a patient decide to provide consent, Pattern.org arranges for excess tumor tissue to be shipped from a patient’s institution to the NETRF cell line research laboratory.

Make sure to talk to your doctor several weeks in advance of your procedure about your plan to donate excess tumor tissue.

If you donate a portion of your tumor tissue to the NETRF Cell Line Project, you can also choose to donate tissue to the institution where you undergo your procedure.

Thanks Annie for valuable information in the fight against NETS!

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