This from our friend and member Annie Farrell:
A subject to let our fellow NET travelers know about. I haven’t had tissue taken in a long time. Don’t think the biopsy two years ago of the golf ball sized tumor near my thyroid counts since they probably just biopsied it, saw it was NET and threw away the remains.
Donate Tumor Tissue to Help Research
Patients can donate tumor tissue through Pattern.org. Pattern.
Make sure to talk to your doctor several weeks in advance of your procedure about your plan to donate excess tumor tissue.
If you donate a portion of your tumor tissue to the NETRF Cell Line Project, you can also choose to donate tissue to the institution where you undergo your procedure.